HAEUK

Registered charity 1152591 · accounts filings on the Charity Commission register

- To establish, maintain and enhance our website.- To provide patient advocacy and support.- To arrange periodic Patient Meetings.- To make representations on various NHS consultation processes and to medical professionals and their professional bodies.- To commission the production and dissemination of best practice documentation for the management of HAE.

Objects

? TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF HEREDITARY ANGIOEDEMA IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE ? TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO HEREDITARY ANGIOEDEMA

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that unrestricted reserves stood at £104,681, which the Trustees confirm is consistent with their policy to maintain reserves sufficient to cover three months of anticipated expenditure. The charity reported a net expenditure deficit of £17,610 for the year, resulting in a decrease in total funds from £122,291 to £104,681.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — HAEUK (matched by registered charity number).

Trustees · trustee networks

• Ann Marie Hardingchair
• Amar Qureshi
• Barrie Sidney Hurley
• DR Timothy Crouch
• Dana Shapiro
• June Cole
• Padmalal Gurugama
• Rosemary Francis Joseph

Trustee list from the Charity Commission register (current, not historical).

Operates in: Scotland · Throughout England And Wales

Income and spending

Common questions