RUBINSTEIN-TAYBI SYNDROME SUPPORT GROUP

Registered charity 1147765 · accounts filings on the Charity Commission register · also known as RTS SUPPORT GROUP

We seek to create a positive supportive network of parents, families and professionals in order to share information and experiences and to give emotional support. Activities include hosting regular get-togethers to support families of those affected by RTS; and the publication of an information booklet, regular newsletters and a website.

Objects

1) THE RELIEF OF THE PERSONS AFFECTED BY RUBINSTEIN TAYBI SYNDROME.2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · Other Charitable Purposes · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a surplus of £6,165 for the year ended 2025, an improvement from the previous year's deficit. Total unrestricted funds increased to £69,040, reflecting higher income from donations and lower overall expenditure. The trustees confirm they monitor the financial position to ensure resources support charitable objectives.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 3 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — Rubinstein-Taybi Syndrome Support Group (matched by registered charity number).

Register events

• Received assets from another charity (20/09/2012) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• ABBAS MEGHJEE
• Danielle McInerney-Jlassia
• Elisabeth Catherine Bach
• Joanna Faye Mullins
• Julian Richard Smith
• Richard Kell
• Roseanna INGHAM
• Zohra Lakha

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).