FOP FRIENDS

Registered charity 1147704 · accounts filings on the Charity Commission register · also known as FOP ACTION, FOP FRIENDS OF OLIVER, FRIENDS OF OLIVER · also registered in Scotland as SC046950 (OSCR)

FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.

Objects

THE RELIEF OF DISTRESS AND SICKNESS FOR THOSE AFFECTED BY FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) A TRAGIC, DEGENERATIVE AND DEBILITATING CONDITION AND TO IMPROVE THE LIVES OF SUFFERERS AND THEIR FAMILIES.TO RAISE PUBLIC AWARENESS AND UNDERSTANDING OF FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP) AND TO PROMOTE EDUCATION AND RESEARCH INTO THE STUDY AND CURE OF FOP AND RELATED CONDITIONS.TO SUPPORT CHARITIES AND ORGANISATIONS UNDERTAKING CHARITABLE ACTIVITIES IN BOTH THE UK AND ABROAD WHO FUND RESEARCH, PROVIDE HELP, SUPPORT, CARE AND TREATMENT FOR PEOPLE AFFECTED BY FOP AND RELATED CONDITIONS.TO SUPPORT ORGANISATIONS RESEARCHING TREATMENTS AND A CURE FOR FOP AND RELATED CONDITIONS.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that gross income totalled £142,840 with net assets carried forward of £420,189. The trustees maintain a reserves policy target of £15,000 to cover operational costs for at least a three-month period, which is well below the actual unrestricted reserves of £235,163.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Paying staff
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public profiles (found on the charity’s own website): facebook

Trustees · trustee networks

• MR CHRIS BEDFORD-GAYchair · trustee of 1 other charity
• ALISON ACOSTA BEDFORD
• Andrew Rankin
• FIONA WHITE
• Helen Bedford-Gay
• RACHEL BEDFORD

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales · United States

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).