THE SOCIETY FOR MUCOPOLYSACCHARIDE DISEASES

Registered charity 1143472 · accounts filings on the Charity Commission register · also known as MPS SOCIETY, WICKED GENES · also registered in Scotland as SC041012 (OSCR)

THIS IS THE INCORPORATED SUCCESSOR CHARITY TO CHARITY NUMBER 287034, WHICH IS ITS UNINCORPORATED PREDECESSOR.The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a surplus of £59,648 for the year ended 31 December 2025, with total group income of £2,184,220 against total expenditure of £2,152,485. Per the trustees' report, free reserves amounted to £740,781, which exceeds the stated policy target of six months of unrestricted resources.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Xeinadin Audit Limited. Discloses 4 of 6 completeness components.

Corporate structure

• Registered company of the charity Companies House 07726882
• Trading subsidiary: MPS COMMERCIAL LIMITED Companies House 08621283
• Trading subsidiary: RARE DISEASE RESEARCH PARTNERS LTD Companies House 12249341

Public fundraising profile: JustGiving — The Society For Mucopolysaccharide Diseases (The MPS Society) (matched by registered charity number).

Leadership, per the charity’s website

• Bob Stevens — Group CEO (source)

Listed on the charity’s own website when we last crawled it; roles may have changed. Pay-band disclosures above are anonymous statutory disclosures and are not attributed to any named individual.

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• National Lottery Community Fund — “We would like to extend our sincere thanks to our key supporters who granted funds towards our services, projects and activities this year, …” (source page)
• Project Alive — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• the Sylvia Aitken Charitable Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• David Lister Charitable Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• the Blair Foundation — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• Himat Tanna Charitable Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• the Florence Turner Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• the Boshier-Hinton Foundation — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• The Arnold Clark Community Fund — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• The Reed Foundation — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• Bruce Wake Charitable Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• Christopher and Elspeth Thomas Charitable Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• the Charles and Elsie Sykes Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• Baddiley Consolidated Charities — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)
• The Eveson Trust — “Other charitable trusts, foundations and organisations who kindly gave donations and grants in 2025 include Project Alive, the Sylvia Aitken…” (source page)

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• MCKEE, Glenn, Dr — director, appointed 26/01/2024on trustee list
• HEALES, Simon James Robert, Professor — director, appointed 26/11/2022on trustee list
• HUGHES, Derralynn Arlene, Professor — director, appointed 26/11/2022on trustee list
• BROWN, Katy Joanne — director, appointed 28/11/2020on trustee list
• STEWART, Fiona Jane, Dr — director, appointed 04/04/2020on trustee list
• PEARSON, Philip John — director, appointed 15/02/2019on trustee list
• PATTON, David Maurice — director, appointed 02/12/2017on trustee list
• WINCHESTER, Bryan Gordon, Prof — director, appointed 02/08/2011on trustee list
• ROBINS, Wilma — director, appointed 02/08/2011on trustee list
• ELLERTON, Toni Anne — secretary, appointed 01/12/2021

Official officers record.

Property (HM Land Registry)

2 registered titles in England and Wales held by the charity’s company or corporate body (2 freehold). All charity-held property. Contains HM Land Registry data © Crown copyright, OGL v3.0.

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/12/2025)

Reported reserves equal ~4.2 months of spending — below the median for charities its size (median 4.8 months; benchmarks).

Per its annual return, largest income source: Other trading activities (43% of income) — components as reported reconcile to the return’s total income; not from the accounts narrative.

Per its annual return, cost of raising funds: 31.3% of total income — in the top quarter for charities its size (median 5.2%) (benchmarks).

Register events

• Received assets from another charity (24/01/2012) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• DAVID MAURICE PATTON
• Dr FIONA JANE STEWART
• Dr GLENN McKee
• JUDITH EVANS
• Katy Joanne Brown
• PROFESSOR BRYAN WINCHESTER
• PROFESSOR DERRALYNN ARLENE HUGHES
• PROFESSOR SIMON JAMES ROBERT HEALES · trustee of 1 other charity
• Philip John Pearson
• WILMA ROBINS

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with MULTIPLE SCLEROSIS SOCIETY.

• MULTIPLE SCLEROSIS SOCIETY income £29.8m
• THE CHRONIC GRANULOMATOUS DISORDER SOCIETY income £359k
• THE PATHOLOGICAL SOCIETY OF GREAT BRITAIN AND IRELAND income £1.5m
• THE MACULAR DISEASE SOCIETY income £8.9m
• The UK Myeloma Society income £190k
• ASSOCIATION FOR GLYCOGEN STORAGE DISEASE (UK) LIMITED income £174k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.