ICHTHYOSIS SUPPORT GROUP

Registered charity 1142457 · accounts filings on the Charity Commission register · also known as ISG

To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.

Objects

3.1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OR ICHTHYOSIS AND NAY ASSOCIATED CONDITION IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE;3.2 TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO ICHTHYOSIS AND ANY ASSOCIATED CONDITION, AND ITS IMPLICATION FOR THE FAMILY;3.3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ICHTHYOSIS AND ANY ASSOCIATED CONDITION AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH, AND TO SUPPORT ORGANISATIONS WORLDWIDE PROMOTING RESEARCH INTO ICHTHYOSIS; AND3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that unrestricted free reserves were £56,996, which is below the charity's stated policy target of around £65,000. The trustees acknowledge that the charity may remain vulnerable to fluctuations in income once legacy funds are committed, noting that future operations will rely on fundraising and grants.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Corporate structure

• Registered company of the charity Companies House 07609904

Public fundraising profile: JustGiving — Ichthyosis Support Group (matched by registered charity number).

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• HOVIS-BROWN, Simon — director, appointed 22/03/2025not on trustee list
• SOHI, Tejvir — director, appointed 31/03/2024on trustee list
• HOLBY, Kay Elizabeth — director, appointed 31/03/2024on trustee list
• SOHI, Baljinder — director, appointed 31/03/2024on trustee list
• LANCASHIRE, Lee James — director, appointed 26/02/2017on trustee list
• ULHAQ, Mudassar — director, appointed 16/11/2014on trustee list
• WHITEHOUSE, Paul William — director, appointed 19/04/2011on trustee list
• ROWLEY, Raymond James — director, appointed 19/04/2011on trustee list
• ALDWIN, Margaret — director, appointed 19/04/2011on trustee list

Official officers record.

Public profiles (found on the charity’s own website): facebook · instagram

Register events

• Received assets from another charity (18/08/2011) — per the register’s event history; asset transfers typically record mergers or reorganisations.

Trustees · trustee networks

• PAUL WILLIAM WHITEHOUSEchair
• Baljinder Sohi
• Kay Holby
• Lee James Lancashire
• MARGARET ALDWIN
• Mudassar Ulhaq
• RAYMOND JAMES ROWLEY
• Simon Brown
• Tejvir Sohi

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).