THE ANNABELLE ROSE FOUNDATION FOR SPINAL MUSCULAR ATROPHY

Registered charity 1139272 · accounts filings on the Charity Commission register · also known as THE ANNABELLE ROSE FOUNDATION

We support sufferers of sma and their families however we can, in line with our objectives: e.g. funding for car/home adaptations, funding specialist medical equipment and toys, financial support, help and support with funeral costs/arrangements, as well as providing emotional support for the families affected by the condition and donating money to fund research.

Objects

THE OBJECTS OF THE ANNABELLE ROSE FOUNDATION SHALL BE:(I) THE RELIEF OF PERSONS SUFFERING FROM SPINAL MUSCULAR ATROPHY AND RELATED CONDITIONS.(II) THE RELIEF IN CASES OF PSYCHOLOGICAL AND EMOTIONAL DISTRESS OF THE PARENTS AND GUARDIANS AND OTHER RELATIVES OF SUCH PERSONS OR OF SUCH PERSONS WHO ARE DECEASED.(III) THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF SPINAL MUSCULAR ATROPHY SUBJECT TO THE PUBLICATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Area of benefit: NOT DEFINED IN PRACTICE NATIONAL

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that the charity held £6,036 in unrestricted cash funds at the year end, meeting its stated policy target of maintaining £3,000–£5,000. Total income was £74,357, generated entirely through fundraising and donations, with total payments of £71,433 resulting in a net surplus for the period. The independent examiner confirmed that no material matters came to their attention regarding the preparation of the accounts.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Complaints policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Serious incident reporting policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Trustees · trustee networks

• WAYNE DANIEL BURFITTchair
• Charlotte Burfitt · trustee of 1 other charity
• DANNY WEBSTER
• GREG CHRISTOPHER TAYLOR
• MICHELLE WEBSTER
• NATALIE CHAROLTTE TAYLOR
• PETER JACKSON
• SOPHIE Jackson
• joanne McBride

Trustee list from the Charity Commission register (current, not historical).

Operates in: Scotland · Throughout England And Wales

Income and spending

Common questions