FANCONI HOPE

Registered charity 1126894 · accounts filings on the Charity Commission register · also registered in Scotland as SC053425 (OSCR)

Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.

Objects

1. TO SUPPORT A UK FANCONI ANAEMIA NATIONAL REGISTRY SO AS TO ENSURE FANCONI ANAEMIA AFFECTED CHILDREN AND THEIR FAMILIES ARE KEPT TRACK OF AND PROVIDED WITH THE BEST CARE.2. TO PROMOTE AWARENESS AND UNDERSTANDING OF FANCONI ANAEMIA AMONG AFFECTED FAMILIES, THE MEDICAL PROFESSION AND THE GENERAL PUBLIC.3. TO ENCOURAGE TRANSLATIONAL RESEARCH THAT MIGHT DIRECTLY BENEFIT FANCONI ANAEMIA RELATED CHILDREN AND THEIR FAMILIES.4. TO ENCOURAGE RESEARCH IN THE AREA OF FANCONI ANAEMIA THAT MIGHT HAVE BEBEFIT FOR THE GENERAL PUBLIC, E.G. IN THE TREATMENT OF CANCERS IN GENERAL.

Area of benefit: UNDEFINED, IN PRACTICE

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity incurred a net deficit of £20,234.75 for the year ended 30 April 2025, resulting in a decrease in total assets from £68,977.20 to £48,742.45. The trustees have retained reserves of £15,000 to support ongoing activities and provide a buffer against funding fluctuations. The independent examiner confirmed that no material matters were identified that would prevent a proper understanding of the accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 5 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Fanconi Hope (matched by registered charity number).

Trustees · trustee networks

• Anna Magee
• Beth Lee
• ROBERT DALGLEISH BSC
• Thomas Carroll

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).