FANCONI HOPE
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
Financial health, per its FY2025 accounts
The accounts state that the charity incurred a net deficit of £20,234.75 for the year ended 30 April 2025, resulting in a decrease in total assets from £68,977.20 to £48,742.45. The trustees have retained reserves of £15,000 to support ongoing activities and provide a buffer against funding fluctuations. The independent examiner confirmed that no material matters were identified that would prevent a proper understanding of the accounts.
What the accounts disclose
“The trustees maintain modest reserves to ensure continuity of operations and tocover essential costs for at least three months of activity” — page 4
Trustees
- Anna Magee
- Beth Lee
- ROBERT DALGLEISH BSC
- Thomas Carroll
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 30/04/2025 | £55k | £75k |
| 30/04/2024 | £71k | £96k |
| 30/04/2023 | £39k | £59k |
| 30/04/2022 | £37k | £48k |
| 30/04/2021 | £27k | £20k |
Common questions
Is FANCONI HOPE financially healthy?
Per its FY2025 accounts: The accounts state that the charity incurred a net deficit of £20,234.75 for the year ended 30 April 2025, resulting in a decrease in total assets from £68,977.20 to £48,742.45. The trustees have retained reserves of £15,000 to support ongoing activities and provide a buffer against funding fluctuations. The independent examiner confirmed that no material matters were identified that would prevent a proper understanding of the accounts. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 28/06/2018 | £8k | Fanconi Hope - Building strong relationships between isolated families |