THE HEATON - ELLIS TRUST
The Trust was set up to help extinguish Motor Neurone Disease (MND) for which there is no specific test or effective treatment. The goal for the MND gene-hunting programme is to discover all the genes responsible for causing MND. Once achieved drugs can be screened that can arrest and even reverse motor neurone degeneration. Funds raised by the trust will help to fund the gene-hunting initiative.
Financial health, per its FY2024 accounts
The accounts state that unrestricted reserves stood at £97,839 as of 5 April 2024, representing a significant increase from the previous year's £13,403. The charity reported total income of £120,211 against total expenditure of £35,775, resulting in a net surplus for the period. The trustees confirmed the charity can continue to operate for the foreseeable future.
What the accounts disclose
Trustees
- SIMON ARBERchair
- CHARLIE CROSSLEY-COOKE
- SOPHIE OLIVIA CONWAY
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 05/04/2025 | £153k | £122k |
| 05/04/2024 | £120k | £36k |
| 05/04/2023 | £8k | £35k |
| 05/04/2022 | £8k | £33k |
| 05/04/2021 | £19k | £2k |
Common questions
Is THE HEATON - ELLIS TRUST financially healthy?
Per its FY2024 accounts: The accounts state that unrestricted reserves stood at £97,839 as of 5 April 2024, representing a significant increase from the previous year's £13,403. The charity reported total income of £120,211 against total expenditure of £35,775, resulting in a net surplus for the period. The trustees confirmed the charity can continue to operate for the foreseeable future. Its FY2024 accounts were independently examined.
Who funds THE HEATON - ELLIS TRUST?
Funders whose own accounts filings name THE HEATON - ELLIS TRUST as a grant recipient include THE LESLIE SMITH FOUNDATION, THE SAMUEL STOREY FAMILY CHARITABLE TRUST.
Known funders
| Funder | Year | Amount | Purpose (as stated by the funder) |
|---|---|---|---|
| THE LESLIE SMITH FOUNDATION | FY2023 | £5k | |
| THE LESLIE SMITH FOUNDATION | FY2024 | £5k | |
| THE LESLIE SMITH FOUNDATION | FY2022 | £5k | |
| THE SAMUEL STOREY FAMILY CHARITABLE TRUST | FY2022 | £2k | |
| THE LESLIE SMITH FOUNDATION | FY2025 | £500 |