AMY AND FRIENDS

Registered charity 1119746 · accounts filings on the Charity Commission register

We organise conferences for members and medical/research specialists to share knowledge and experience. We assist families in attending other support opportunities and taking part in CS research programmes. We organise group days out for families to enjoy precious time together. We provide respite care and a siblings club. We support families at our dedicated clinic at Thomas and Guys Hospital.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Latest income
£417k
Latest spending
£374k
Registered
2007
Accounts read
FY2025

Financial health, per its FY2025 accounts

The accounts state that the charity's main activity is organizing an annual retreat and medical conference for families affected by Cockayne Syndrome. The trustees declare that they have approved the report, but no financial figures, reserves, or audit status are disclosed in the provided text.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Reserves policy: 50% of fundraising surplus over £5,000
“If fundraising target was exceeded in a financial year by £5000, a reserve account would be established and 50% of any such amount would be placed in this account” — page 7
Per its FY2025 accounts as filed with the Charity Commission.

Discloses 4 of 6 completeness components.

Public fundraising profile: JustGiving — Amy and Friends (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Financial year endIncomeSpending
31/03/2025£417k£374k
31/03/2024£262k£235k
31/03/2023£325k£318k
31/03/2022£249k£243k
31/03/2021£245k£247k

Common questions

Is AMY AND FRIENDS financially healthy?

Per its FY2025 accounts: The accounts state that the charity's main activity is organizing an annual retreat and medical conference for families affected by Cockayne Syndrome. The trustees declare that they have approved the report, but no financial figures, reserves, or audit status are disclosed in the provided text.

Who funds AMY AND FRIENDS?

Funders whose own accounts filings name AMY AND FRIENDS as a grant recipient include THE STEVE MORGAN FOUNDATION, THE WILL CHARITABLE TRUST, THE BARBARA WARD CHILDREN'S FOUNDATION, THE EDWARD GOSTLING FOUNDATION, THE ANTON JURGENS CHARITABLE TRUST.

Known funders

Grants to this charity found in funders’ own accounts filings.

FunderYearAmountPurpose (as stated by the funder)
THE STEVE MORGAN FOUNDATIONFY2024£77k
THE WILL CHARITABLE TRUSTFY2025£20kCare of the Blind, Prevention of, or Cure of Blindness
THE WILL CHARITABLE TRUSTFY2023£20kBlind Care
THE BARBARA WARD CHILDREN'S FOUNDATIONFY2025£15k
THE BARBARA WARD CHILDREN'S FOUNDATIONFY2024£15k
THE BARBARA WARD CHILDREN'S FOUNDATIONFY2023£10k
THE EDWARD GOSTLING FOUNDATIONFY2022£10k
THE WILL CHARITABLE TRUSTFY2022£10kBlind Care
THE BARBARA WARD CHILDREN'S FOUNDATIONFY2022£8k
THE ANTON JURGENS CHARITABLE TRUSTFY2025£7k
PILKINGTON CHARITIES FUNDFY2022£5k
THE CADBURY FOUNDATIONFY2022£5kHealth and Wellbeing
THE JOHN HORSEMAN TRUSTFY2024£3k
LONDON CATALYSTFY2023£3kSessional costs and activity packs to assist families attending the rare genetic disorder clinic and conference.
THE TUDWICK FOUNDATIONFY2023£3k
BIRKDALE TRUST FOR HEARING IMPAIRED LTDFY2024£1k
THE JOHN HORSEMAN TRUSTFY2025£0
THE DAVID FAMILY FOUNDATIONFY2022£0

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).

FunderDateAmountPurpose
The National Lottery Community Fund24/10/2025£114kAnticipatory Grief Support
Postcode Lottery08/10/2025£50kUnrestricted Funding
The National Lottery Community Fund27/02/2025£20kAmy and Friends Family Zoom Scotland
The National Lottery Community Fund13/09/2024£20kAnticipatory Grief Support Project
The National Lottery Community Fund23/05/2024£7kSibling Camping Trip in North Wales
The National Lottery Community Fund27/03/2023£127kWell being Support
The National Lottery Community Fund03/03/2023£10kVolunteer and Activity Coordinator
The National Lottery Community Fund23/02/2022£10kSessional Worker
The National Lottery Community Fund24/01/2022£10kCOVID - 19 Wellbeing sessions
The National Lottery Community Fund17/09/2021£10kHealth and Wellbeing
The National Lottery Community Fund15/02/2021£10kCOVID-19 My Time To Be Me
The National Lottery Community Fund18/01/2021£10kMy Time To be Me - Lanarkshire
The National Lottery Community Fund30/07/2020£5kSessional Work for Family wellbeing
The National Lottery Community Fund18/06/2020£73kWellbeing Support
The National Lottery Community Fund22/04/2020£10kActivity Co-ordinator
The National Lottery Community Fund03/02/2020£4kAMY AND FRIENDS GRIEF COUNSELLING/WELLBEING WEEKEND
The National Lottery Community Fund14/01/2020£9kMy Time To Be Me
The National Lottery Community Fund06/11/2018£10kMy Time to be Me
The National Lottery Community Fund22/05/2018£5kMy Time To Be Me
The National Lottery Community Fund21/07/2016£5kAmy and Friends - My Time To Be Me
The National Lottery Community Fund20/07/2016£10kFamily Support & Counselling through Play Weekend
The National Lottery Community Fund23/02/2012£10kAmy and Friends Sensory Equipment
The National Lottery Community Fund18/02/2010£10kAmy and Friends 4th Annual Retreat

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with HOOKHILLS AND BROADSANDS PARK COMMUNITY ASSOCIATION.

Side by side with its peers

CharityIncomeTop pay bandStaff >£60kReserves vs policyFundraising costGoing concern
AMY AND FRIENDS£417k—0unclear—no doubt
HOOKHILLS AND BROADSANDS PARK COMMUNITY ASSOCIATION FY2025£302k—0unclear—no doubt
AUTISM MATTERS FY2024£1.3m—0unclear—no doubt
THE COUNCIL OF EUROPEAN JAMAATS FY2024£2.7m—0unclear—no doubt
ASD HELPING HANDS FY2025£129k—0unclear—no doubt
SOUTHEND CHRISTIAN FELLOWSHIP FY2024£424k—0unclear—no doubt

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.