THE XLP RESEARCH TRUST

Registered charity 1111075 · accounts filings on the Charity Commission register

Founded in 2005, the XLP Research Trust exists to 1. Promote and fund research into the cause, management, symptoms and cure for XLP 2. Provide a point of contact and support for those families affected by XLP 3. Raise the awareness of XLP amongst the medical profession and the general public

Objects

A.TO PRESERVE AND PROTECT THE HEALTH AND RELIEVE PERSONS SUFFERING FROM X-LINKED LYMPHOPROLIFERATIVE SYNDROME (XLP) AND THEIR FAMILIES.B. TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC IN THE SUBJECT OF XLP AND ITS IMPLICATIONS FOR THE FAMILIES OF THOSE SUFFERING FROM THE AFOREMENTIONED CONDITION.C. TO PROMOTE RESEARCH INTO XLP AND TO PUBLICISE THE RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING CHARITABLE RESEARCH INTO X-LINKED LYMPHOPROLIFERATIVE.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · website · Get email alerts

We have not yet analysed this charity’s accounts. Register data shown below.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints handling
• Risk management
• Volunteer management

Trustees · trustee networks

• David Hartleychair · trustee of 1 other charity
• ALLISON RUTH HARTLEY
• IAN DUNCAN KENNY
• TREVOR BOND

Trustee list from the Charity Commission register (current, not historical).

Operates in: Throughout England And Wales

Income and spending

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).