DIAMOND BLACKFAN ANAEMIA SUPPORT GROUP UK

Registered charity 1083179 · accounts filings on the Charity Commission register · also known as DBA SUPPORT GROUP UK, DBA UK

Provide support to families affected by Diamond Blackfan Anaemia.Provide information and education on the condition.

Objects

A) FOR THE RELIEF OF SICKNESS OF THOSE SUFFERING EITHER DIRECTLY OR INDIRECTLY FROM DIAMOND BLACKFAN ANAEMIA (DBA), AND ASSOCIATED CONDITIONS.B) TO EDUCATE THE GENERAL PUBLIC THROUGH PROMOTION OF RESEARCH AND THE DISSEMINATION OF KNOWLEDGE ABOUT DIAMOND BLACKFAN ANAEMIA (DBA).

Area of benefit: NOT DEFINED. IN PRACTICE ENGLAND AND WALES, SCOTLAND AND NORTHERN IRELAND

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2024 accounts

The accounts state that the charity reported a net deficit of £15,949 for the year, reducing its unrestricted funds from £142,826 to £126,877. Despite this loss, the trustees confirm the charity has adequate resources to continue as a going concern with no material uncertainty. The charity's reserves policy targets holding £75,000, which is below the actual unrestricted funds of £126,877.

Automated summary of the FY2024 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 6 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Risk management
• Safeguarding policy and procedures
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Diamond Blackfan Anaemia Support Group Uk (matched by registered charity number).

Trustees · trustee networks

• Leisa Batkinchair
• Eleanor May Hudson
• Jayson Whitaker
• Joanne Hubbard
• Peter Redmond

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Throughout England And Wales

Income and spending

Common questions