Stickler Syndrome UK

Registered charity 1060421 · accounts filings on the Charity Commission register · also known as DAVID PITCHER TRUST FOR YOUNG PERSONS, STICKLER SYNDROME CHARITABLE TRUST, STICKLER SYNDROME SUPPORT GROUP

Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.

Objects

TO PROTECT AND PRESERVE HEALTH BY INFORMING THE PUBLIC OF THE DANGERS OF RETINAL DETACHMENT AND THE IMPORTANCE OF EARLY DIAGNOSIS AND TREATMENT; TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF STICKLER SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY; TO RELIEVE PERSONS SUFFERING FROM STICKLER SYNDROME AND ASSOCIATED CONDITIONS.

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity's unrestricted reserves decreased from £49,479 to £34,944 during the year, resulting in a net expenditure of £14,535. The trustees and accountants confirm that current and future sources of funding are adequate to meet the charity's needs on a going concern basis.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Complaints policy and procedures
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Safeguarding policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures

Public fundraising profile: JustGiving — Stickler Syndrome UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

• Elaine Bruley
• Ian Ernest Joslin
• Sarah Catherine Maybourne · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Ireland · Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions