THE PSP ASSOCIATION

Registered charity 1037087 · accounts filings on the Charity Commission register · Wikidata: Q30273005 · also known as THE PROGRESSIVE SUPRANUCLEAR PALSY (PSP) [EUROPE] ASSOCIATION · also registered in Scotland as SC041199 (OSCR)

Provide help & support to everyone affected by PSP and CBD with information and support to enable them to live the best life they can.We raise awareness of PSP and CBD, particularly with health professionals and decision-makers, so that they recognise the conditions and have the skills and knowledge to help those affected access the right services at the right time.

Objects

The primary object for which the Association is established is the relief of persons suffering from Progressive Supranuclear Palsy, known otherwise as Steele Richardson Olswzewski Syndrome (hereinafter referred to as PSP) and Corticobasal Degeneration/Corticobasal Syndrome (hereinafter both referred to as CBD) and the promotion of research into the causes, prevention and cure of these diseases and the dissemination of the results of the research for the benefit of the public

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The charity reported a surplus of £380,014 for the year ending 31 December 2025, with total income exceeding £2 million for the first time. The trustees state that general unrestricted reserves of £1,834,745 are held, which is above the stated policy target of nine months of budgeted fixed costs. The accounts confirm the charity is in a strong financial position with adequate liquidity to meet its obligations.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts audited by Field Sullivan. Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Campaigns and political activity policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Engaging external speakers at charity events policy and procedures
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Investing charity funds policy and procedures
• Investment
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

From the charity’s annual return (Part A, self-declared)

Answers and figures the charity gave in Part A of its annual return to the Charity Commission. They are self-declared: not verified by the Commission or by this site. Only positive answers and figures are listed; items not listed are simply not shown.

Source: this charity’s annual returns on the Charity Commission register.

Corporate structure

• Registered company of the charity Companies House 02920581

Public fundraising profile: JustGiving — PSPA (matched by registered charity number).

Funders the charity credits

Named as funders/supporters on the charity’s own website (the charity’s claim, distinct from accounts-verified grants).

• Emerald Colour — “EC held a staff ballot for their charity of the year for 2023. PSPA were nominated due to a personal connection of one of the employees. Sin…” (source page)
• Hill Dickinson LLP — “The Hill Dickson team will be supporting PSPA via a variety of fundraising events and stamp recycling after staff chose us as their Charity …” (source page)
• Novenary — “Novenary are supporting PSPA by donating 15% of their monthly sales for a specific period. They are also going to collaborate with us on spe…” (source page)
• Paragon — “Paragon, one of the UK’s largest business service providers, have supported PSPA for numerous years as a regular print and distribution supp…” (source page)
• Verdant Financial Planning Ltd — “Verdant Financial Planning Ltd support PSPA through showcasing our charity on their community page and have supported the charity with ad-ho…” (source page)
• Talbot Underwriting Ltd — “Now part of the AIG group, Talbot Underwriting Limited were our Charity of the Year partners from 2021 tp 2022, and in that time raised over…” (source page)
• Pavers — “Pavers supported PSPA in 2021 by sponsoring the launch of the PSPA Podcast . Charity donations and sponsorships are agreed by Pavers via a s…” (source page)

Company officers (Companies House)

Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.

• LINDOP, Fiona Ann — director, appointed 01/04/2025on trustee list
• ANGUS-LEPPAN, Heather, Professor — director, appointed 01/04/2025on trustee list
• WHITTLE, Thomas — director, appointed 01/01/2025on trustee list
• REDFERN, John Daniel — director, appointed 01/01/2025on trustee list
• RICHARDSON, Greg Alexander — director, appointed 01/01/2024on trustee list
• TENANT, Maria Elizabeth, Dr — director, appointed 01/01/2024not on trustee list
• JAMES, Alison Rodger — director, appointed 01/10/2021on trustee list
• GHOSH, Boyd, Dr — director, appointed 01/07/2021on trustee list
• IRONSIDE, Rowena Helen — director, appointed 01/04/2021on trustee list
• CUSACK, James Peter — secretary, appointed 01/12/2025

Official officers record.

Public profiles (found on the charity’s own website): facebook · instagram

Structured financials (annual return, FY ending 31/12/2025)

Reported reserves equal ~12.9 months of spending — in the top quarter for charities its size (median 4.7 months; benchmarks).

Per its annual return, cost of raising funds: 24.1% of total income — in the top quarter for charities its size (median 5.3%) (benchmarks).

Trustees · trustee networks

• Alison Rodger James
• Dr Boyd Ghosh · trustee of 1 other charity
• Dr Maria Elizabeth Tennant
• Fiona Ann Lindop
• Greg Alexander Richardson
• JOHN REDFERN
• Laura Galyer
• Professor Heather Angus-Leppan
• Rowena Helen Ironside
• THOMAS IAN WHITTLE

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Known funders

Grants to this charity found in funders’ own accounts filings.

Funders of similar charities

Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.

Charities like this

Semantically similar by activities and financial character, from our analysed corpus. Compare with PSS (UK).

• PSS (UK) income £25.3m
• Paediatric Critical Care Society income £212k
• SUPPORTIVE SRC LTD income £5.9m
• THE SOCIAL POLICY ASSOCIATION income £219k
• STOCKTON AND DISTRICT ADVICE AND INFORMATION SERVICE income £1.6m
• PROFESSIONALS AID COUNCIL income £199k

Side by side with its peers

Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.