ACTION FOR ME
Registered charity 1036419 · accounts filings on the Charity Commission register · also known as ACTION FOR M E, AFME · also registered in Scotland as SC040452 (OSCR)
Action for M.E. was established for the relief of people suffering from the disease MyalgicEncephalomyelitis, (commonly known as M.E., or CFS/ME), and to provide information, advice and support, and to promote public education, campaigning and research into the disease. On a day to day basis we provide telephone support to people with M.E., manage Online M.E Centre and publish 'InterAction'.
Causes: General Charitable Purposes · Education/training · The Advancement Of Health Or Saving Of Lives · Disability · The Prevention Or Relief Of Poverty · Other Charitable Purposes · Grant history (this charity is a funder) · website · Get email alerts
Financial health, per its FY2025 accounts
The accounts state that the charity reported a deficit of £416k for the year, resulting in a decrease in accumulated funds and cash reserves. Despite this deficit, the trustees confirm that unrestricted reserves of £397.9k remain within the stated policy target of three to six months of operating costs. The auditor noted material uncertainties over going concern but concluded that the use of the going concern basis of accounting was appropriate.
Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.
What the accounts disclose
Reserves policy: three to six times monthly unrestricted operating costs (held: £398k)
“The current policy is to maintain sufficient funds deemed ‘free’ (unrestricted) at no less than three times, and no more than six times, the monthly unrestricted operating costs of the charity.”
Per its FY2025 accounts as filed with the Charity Commission.
Going concern: material uncertainty disclosed
“The Trustees consider that there are material uncertainties over going concern.”
Per its FY2025 accounts as filed with the Charity Commission.
Accounts audited by Sumer Audit Co Limited. Discloses 4 of 6 completeness components.
Corporate structure
Company officers (Companies House)
Current officers of the charity’s own company per the Companies House register, cross-checked against the Charity Commission trustee list by name. A director not on the trustee list is usually a timing or naming difference between the two registers — check both records before drawing conclusions.
- CLARK, Beatrix Diane — director, appointed 26/11/2025on trustee list
- ANDERSON, Sarah — director, appointed 26/11/2025on trustee list
- MORGAN, Colin Andrew — director, appointed 03/07/2025on trustee list
- LIPPMANN, Wendy — director, appointed 05/12/2024on trustee list
- BOYLE, Rosalyn Elizabeth — director, appointed 25/06/2024on trustee list
- BULMER, Eleanor Jessie — director, appointed 29/09/2023on trustee list
- SANTIAPILLAI, Nirmala, Dr — director, appointed 20/09/2022on trustee list
- DEVINE, Julianne — director, appointed 04/02/2022on trustee list
- COURTNEY, Phillip — director, appointed 01/02/2022not on trustee list
- MANUEL, Jonathan Roy — director, appointed 11/02/2021on trustee list
- DE BOO, Shaun Vernon — director, appointed 11/02/2021not on trustee list
- LEIGH, David Bernard — director, appointed 13/11/2020on trustee list
- SIDDLE, Roger William John — director, appointed 15/10/2019on trustee list
Official officers record.
CQC provider record: Action for M.E. — Registered, 3 registered locations, 1 regulated activity.charity number confirmed by CQC CQC record
Public profiles (found on the charity’s own website): facebook · instagram · linkedin
Structured financials (annual return, FY ending 31/03/2025)
Cost of raising funds
£420k
Reported reserves equal ~2.7 months of spending — below the median for charities its size (median 4.8 months; benchmarks).
Per its annual return, cost of raising funds: 30.7% of total income — in the top quarter for charities its size (median 5.2%) (benchmarks).
Register events
- Received assets from another charity (05/04/2022) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Received assets from another charity (18/03/2021) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Received assets from another charity (16/05/2018) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Received assets from another charity (10/05/2017) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Received assets from another charity (02/01/2015) — per the register’s event history; asset transfers typically record mergers or reorganisations.
- Roger Siddlechair
- Beatrix Clark
- Colin Morgan
- David Bernard Leigh
- Dr Nirmala Santiapillai
- Jonathan Manuel
- Julianne Devine
- Philip Courtney
- Rosalyn Elizabeth Boyle
- Sarah Anderson
- Shaun Vernon De Boo · trustee of 1 other charity
- Wendy Lippmann
Trustee list from the Charity Commission register (current, not historical).
Operates in: Northern Ireland · Scotland · Throughout England And Wales
Income and spending
Common questions
Is ACTION FOR ME financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a deficit of £416k for the year, resulting in a decrease in accumulated funds and cash reserves. Despite this deficit, the trustees confirm that unrestricted reserves of £397.9k remain within the stated policy target of three to six months of operating costs. The auditor noted material uncertainties over going concern but concluded that the use of the going concern basis of accounting was appropriate. Its FY2025 accounts were audited by Sumer Audit Co Limited.
Who funds ACTION FOR ME?
Funders whose own accounts filings name ACTION FOR ME as a grant recipient include THE FIDELITY UK FOUNDATION, JOHN SWIRE 1989 CHARITABLE TRUST, THE DE LASZLO FOUNDATION, PEACOCK CHARITABLE TRUST, THE PRUDENCE TRUST.
Known funders
Grants to this charity found in funders’ own accounts filings.
Government & lottery funding
Grants to this charity published as open data by government and lottery funders (360Giving).
Funders of similar charities
Funders whose accounts show grants to charities similar to this one (and no recorded grant to this charity) — a starting list for fundraisers.
Charities like this
Semantically similar by activities and financial character, from our analysed corpus. Compare with THE MYALGIC ENCEPHALOPATHY ASSOCIATION LIMITED.
Side by side with its peers
Each row is that charity’s latest analysed filing; every value is quote-backed on its own page.