SOFT UK
SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.
Financial health, per its FY2025 accounts
The accounts state that the charity reported a surplus of £3,331 for the year ended 30 April 2025, with total income of £69,838 and total expenditure of £66,507. Per the trustees' report, the charity holds unrestricted free reserves of £116,928, which exceeds its stated policy target of £70,000 (representing 12 months of running costs). The independent examiner confirmed that no material matters came to their attention during the examination of the accounts.
What the accounts disclose
Trustees
- MRS J FOWLERchair
- ALISON PEARSON
- DR D ROBBINS
- Deborah Louise Kadum
- John Christopher O'Toole
- Larry Crofton
- Laura Petrie
- MRS L EGAN
- Rebecca Margaret Wirth
- Sunil Singh
Income and spending
| Financial year end | Income | Spending |
|---|---|---|
| 30/04/2025 | £70k | £67k |
| 30/04/2024 | £80k | £55k |
| 30/04/2023 | £45k | £67k |
| 30/04/2022 | £74k | £59k |
| 30/04/2021 | £63k | £33k |
Common questions
Is SOFT UK financially healthy?
Per its FY2025 accounts: The accounts state that the charity reported a surplus of £3,331 for the year ended 30 April 2025, with total income of £69,838 and total expenditure of £66,507. Per the trustees' report, the charity holds unrestricted free reserves of £116,928, which exceeds its stated policy target of £70,000 (representing 12 months of running costs). The independent examiner confirmed that no material matters came to their attention during the examination of the accounts. Its FY2025 accounts were independently examined.
Government & lottery funding
| Funder | Date | Amount | Purpose |
|---|---|---|---|
| The National Lottery Community Fund | 19/03/2024 | £7k | Building a Support Network for Welsh Families affected by Trisomy |
| The National Lottery Community Fund | 08/12/2023 | £10k | Trisomy Resource Development Project |
| The National Lottery Community Fund | 18/07/2023 | £8k | Connecting Trisomy Families Across Scotland |
| The National Lottery Community Fund | 12/10/2020 | £10k | Covid-19 - You're Not Alone |
| The National Lottery Community Fund | 30/01/2020 | £5k | SOFT UK Northern Ireland Family Day |
| The National Lottery Community Fund | 25/01/2019 | £7k | Developing SOFT UK Volunteer Community |