SOFT UK

Registered charity 1002918 · accounts filings on the Charity Commission register · also known as SUPPORT ORGANISATION FOR TRISOMY 13 & 18 AND RELATED DISORDERS · also registered in Scotland as SC043341 (OSCR)

SOFT UK provides information and support to families affected by Trisomy 13 (Patau's syndrome), Trisomy 18 (Edwards' syndrome) and related disorders. SOFT UK runs a website, produces printed information and runs a volunteer befriender programme. SOFT UK also holds annual family days in England and Scotland and a biennial family day in Northern Ireland.

Objects

TO RELIEVE THE SICKNESS OF CHILDREN WITH CHROMOSOMATIC ABNORMALITY AND OTHER RARE MEDICAL CONDITIONS (FOR FURTHER DETAILS SEE CLAUSE 2 OF DECLARATION OF TRUST

Area of benefit: NOT DEFINED

The charity’s charitable objects and area of benefit, quoted from its governing document as held on the Charity Commission register.

Causes: Education/training · The Advancement Of Health Or Saving Of Lives · Disability · website · Get email alerts

Financial health, per its FY2025 accounts

The accounts state that the charity reported a surplus of £3,331 for the year ended 30 April 2025, with total income of £69,838 and total expenditure of £66,507. Per the trustees' report, the charity holds unrestricted free reserves of £116,928, which exceeds its stated policy target of £70,000 (representing 12 months of running costs). The independent examiner confirmed that no material matters came to their attention during the examination of the accounts.

Automated summary of the FY2025 accounts; the evidenced findings below carry the verbatim passages.

What the accounts disclose

Accounts independently examined (not a full audit). Discloses 4 of 6 completeness components.

Policies the charity declares

In its annual return the charity told the Commission that it has the policies listed below. This is self-declared: it is not verified by the Commission or by this site, and it is not evidence of how a policy works in practice.

• Bullying and harassment policy and procedures
• Complaints handling
• Complaints policy and procedures
• Conflicting interests
• Financial reserves policy and procedures
• Internal charity financial controls policy and procedures
• Internal risk management policy and procedures
• Paying staff
• Risk management
• Safeguarding policy and procedures
• Safeguarding vulnerable beneficiaries
• Serious incident reporting policy and procedures
• Social media policy and procedures
• Trustee conflicts of interest policy and procedures
• Trustee expenses policy and procedures
• Volunteer management

Public fundraising profile: JustGiving — SOFT UK (matched by registered charity number).

Public profiles (found on the charity’s own website): facebook · instagram

Trustees · trustee networks

• MRS J FOWLERchair
• ALISON PEARSON
• DR D ROBBINS
• Deborah Louise Kadum
• John Christopher O'Toole
• Larry Crofton
• Laura Petrie
• MRS L EGAN
• Rebecca Margaret Wirth
• Sunil Singh · trustee of 1 other charity

Trustee list from the Charity Commission register (current, not historical).

Operates in: Northern Ireland · Scotland · Throughout England And Wales

Income and spending

Common questions

Government & lottery funding

Grants to this charity published as open data by government and lottery funders (360Giving).